COURTNEY STECKER -- Battens Disease -- #159

Courtney Stecker – Battens Disease – #157

Wheeler is the beautiful boy of Judy and Courtney Stecker.  Unfortunately, Wheeler was born with a genetic anomaly that affects the development and functioning of his brain — fortunately Wheeler is a warrior and the Steckers have all the determination and love to help Weller’s brain get better.  

Wheeler has  Battens disease — an extremely rare genetic condition for which there is no cure — YET! Symptoms manifest at a young age and the chances of living past teens can be slim, and right now there are only 500 known cases of Battens in the US — but there is hope in research and there is hope in medicine.  In just the short span of Wheeler’s life, the first ever treatment to combat Battens has been developed.  With science, hope, and love anything is possible — that’s how Wheeler rolls; that’s how the Steckers roll — and money helps too!

https://beyondbatten.org/stecker-research-fund/

Thank you Courtney for telling the Wheeler story (part 1) and speaking your passion.  The more people know the closer we move to a cure and to erase Batten from the collective lexicon.  And hopefully one day Wheeler will sit with Wheeler jr. on his knee to tell him about some stupid and strange disease that no longer exists!

“Remember Red — Hope is a good thing, maybe the best of things, and no good thing ever dies.  

I will be hoping that this letter finds you and finds you well.”

 — The Shawshank Redemption (the #1 ranked movie of all time on IMDb)

(If Red and Andy can do it, so can Wheeler!)

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